PSC Community

Welcome to the PSC Community

who we are

The PSC Community is a place for people who would like to be part of a global community seeking to find a cure.  It is a place where patients, caregivers, families, physicians and researchers can find information about PSC.

Our goal is to increase awareness about PSC and help patients and caregivers connect with others affected by the disease.  We are a growing group of dedicated volunteers helping others with this rare disease to balance life, family and PSC.

what we do

  • we maintain a website with the latest PSC research and developments
  • we provide online support through our forum and blog
  • we publish a quarterly newsletter
  • we connect patients and caregivers with others affected by PSC
  • we promote patient empowerment and healthcare advocacy
  • we increase awareness about PSC through social media, professional alliances and collaborations with like-minded organizations

what we advocate

  • support for people living with PSC and other types of liver disease
  • awareness, support and education about PSC and health related issues
  • new research and treatments for PSC
  • education about liver transplantation and organ donation
  • enhanced healthcare policies for those living with rare diseases

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